At IAFFPE, we’ve been working hard behind the scenes to make FPIES more widely known in the medical community, to help ensure that no child suffers from a delayed diagnosis. To that end, we’re excited to highlight two important new initiatives for 2013!
First, our Medical Advisory Board has drafted an FPIES Fact Sheet that will be distributed to EVERY pediatrician in the U.S. by the American Academy of Pediatrics Section on Allergy and Immunology. IAFFPE’s Dr. Scott Sicherer is leading this effort to help educate frontline providers about FPIES and ultimately reduce the amount of time that patients go without diagnosis.
For our next big initiative, IAFFPE’s Medical Advisory Board has developed four surveys aimed at measuring global FPIES awareness among medical professionals. The surveys will poll four key groups (pediatricians, allergists, GI, dietitians) on their general knowledge of FPIES and how to diagnose and treat the condition. The results will help us understand how to better educate physicians in the diagnosis and management of FPIES. This will also help us identify our research priorities so that every dollar donated is spent wisely and in the best interest of FPIES families.
These are just a few of the substantive steps IAFFPE is taking to advance the cause. We couldn’t do it without the dedication of our Medical Advisory Board and the daily inspiration we get from our resilient FPIES community.