Our own Fallon Schultz recently had the pleasure of writing a guest blog post for AllergyHome about FPIES and the work we do.
If you haven’t heard of AllergyHome, it’s an essential site for anyone caring for a child with food allergies. AllergyHome specializes in developing practical teaching tools that benefit our communities. One of our favorite resources is their comprehensive guide Living Confidently with Food Allergy. AllergyHome has also designed an array of valuable tools for managing food allergy at school.
We are very excited to help kick off AllergyHome’s guest blog series highlighting organizations that work with and support the food allergy community. As guest blogger, IAFFPE Founder and Chair Fallon Schultz offers a look at FPIES, a rare non-IgE mediated food allergy that affects her son, and discusses some of IAFFPE’s key initiatives to increase awareness and improve the lives of patients and families living with FPIES. Thank you to AllergyHome for this opportunity!
IAFFPE is thrilled to award Shaula Brown our $500 Travel Grant to attend our 2013 FPIES Education Conferencein Philadelphia, PA on October 20th. Shaula is the mother of 7-month-old Ryan, who was recently diagnosed with FPIES after many months of pain and uncertainty. Our travel grant program seeks to encourage and support families in need, and Shaula’s award will enable her family to cover conference-related expenses such as airfare and lodging.
The Browns have faced the same challenges that so many FPIES families face: the pain and worry of a delayed diagnosis; the lack of a cohesive team to guide them; the stress and monetary burdens. Shaula had a strong desire to attend the conference but it wasn’t financially possible to make the trip from her home in Colorado. With no safe foods, Ryan’s only source of nutrition is costly elemental formula that is not covered by the family’s insurance.
“I can’t even begin to fully express what it to means to me to be able to attend the conference and to get the support we desperately need,” Shaula said when we notified her of the award. She is excited to take on an active role to educate others about FPIES and spread IAFFPE’s message. She looks forward to sharing thoughts and videos from her conference experience with the entire FPIES community. Prior to receiving this grant, Shaula was already active in sharing her FPIES journey and raising awareness by blogging and guest blogging.
Thank you to everyone who applied for IAFFPE’s Travel Grant for the 2013 FPIES Education Conference. The decision-making process was a very difficult one, with so many worthy applicants and only a limited amount of grant dollars. We were touched by the compelling stories we received and plan to expand our grant program for future conferences.
We are excited to give this family the opportunity to find some hope and support at our gathering of parents and experts. Congratulations Shaula!