New Growth and Leadership for IAFFPE’s Medical Advisory Board

New MAB Chair Dr. Anna Nowak-Wegrzyn (L) and IAFFPE Founder Fallon Schultz

New MAB Chair Dr. Anna Nowak-Wegrzyn (L) and IAFFPE Founder Fallon Schultz

The International Association for Food Protein Enterocolitis (IAFFPE) is proud to name a new chair and three additional members to our Medical Advisory Board (MAB), which is comprised of the world’s leading experts on Food Protein-Induced Enterocolitis Syndrome (FPIES).

Dr. Anna Nowak-Wegrzyn will take on the role of MAB Chair. She is currently an Associate Professor of Pediatric Allergy and Immunology at Mt. Sinai Medical Center in New York, NY. The position holds a three-year term in the organization that rotates within different institutions.

Dr. Nowak-Wegrzyn shares the organization’s global vision and has an innovative agenda for her term. She has already made significant contributions to our community through research and clinical practice, and we are very excited about the future of IAFFPE under her guidance.

We also thank outgoing Chair Dr. Jonathan Spergel for his remarkable leadership and dedication over the past three years; we are thrilled he will remain a key part of our Medical Advisory Board.

IAFFPE’s Medical Advisory Board is composed of allergists, immunologists, gastroenterologists and nutritionists who share a common purpose to create global collaboration for the diagnosis, treatment, management and advancement of FPIES. The MAB advises the organization on FPIES education, awareness and advocacy initiatives while also providing medical review of our web content and educational materials.

As part of our effort to advance awareness and understanding of FPIES at an international level, we’re also thrilled to announce three new MAB members:

  • Dr. Jin-Bok Hwang
    Department of Pediatrics, Keimyung University School of Medicine, Daegu, Korea
  • Dr. Antonella Muraro
    Pediatric Allergy, Paediatric Department of the University Hospital of Padua, Italy
  • Dr. Ichiro Nomura
    Department of Allergy and Immunology, National Research Center for Child Health and Development, Tokyo, Japan

These additional members reflect the global nature of our research and initiatives. We are privileged and excited to partner with such an accomplished group of physicians, researchers and thought leaders!

New Details: FPIES Education Conference

FPIES Education ConferenceWe’re excited to share new details about our first annual FPIES conference for parents and caregivers!

2013 FPIES Education Conference
October 20, 2013
Philadelphia, PA

First, the conference will be a unique opportunity for attendees to participate in FPIES research. A “live” research study will be conducted at the conference, and participants will be able to provide information for the study. Led by Dr. Matthew Greenhawt, the study will focus on the quality of life for FPIES patients and families.

In addition, the conference will be your chance to meet and hear from our team of FPIES experts. The lineup includes: Drs. Anna Nowak-Wegrzyn (Mt. Sinai), Jonathan Spergel (CHOP), Matthew Greenhawt (University of Michigan), Mirna Chehade (Mt. Sinai), as well as Marion Groetch (Mt. Sinai), Sally Noone (Mt. Sinai), and Kim Mudd (Johns Hopkins).

We value the feedback we’ve received from you and have incorporated it into our agenda. We’re finalizing the program, which features a broad range of topics that matter most to FPIES families, everything from the latest medical knowledge to practical tips for daily life. Stay tuned for more details about the FPIES Education Conference!

FPIES and IAFFPE Featured in ABCNews Article

Food Allergy Stresses Moms, Baffles Doctors

Food Allergy Stresses Moms, Baffles Doctors

A new ABCNews article puts the spotlight on FPIES as a rare and often misunderstood food allergy. The piece features IAFFPE Founder Fallon Schultz and our medical adviser Dr. Anna Nowak-Wegrzyn of Mt. Sinai’s Jaffe Food Allergy Institute. It emphasizes that a non-IgE allergy like FPIES is often difficult to diagnose and treat. Further, it underscores the need to raise awareness of the symptoms amongst pediatricians, ER staff and allergists.

Read the article >

Rare Disease Day 2013: Spotlight on FPIES

IAFFPE RDD 2013IAFFPE was thrilled to participate in Rare Disease Day 2013 on February 28th. Rare Disease Day brings awareness to the thousands of rare conditions that need hope and recognition, including Food Protein Enterocolitis Syndrome (FPIES). We honored the day by unveiling a new video segment on the fact vs. fiction of FPIES, featuring Dr. Anna Nowak-Wegrzyn, an FPIES expert from the Jaffe Food Allergy Institute at Mount Sinai. Thanks to video sponsor Neocate for helping our foundation shed light on a rare disease in the food allergy community.

FPIES: A Conversation with Dr. Anna Nowak-Wegzryn

In addition, IAFFPE’s Amity Westcott-Chavez represented IAFFPE and the FPIES community at a Rare Disease Day event at the California State Capitol. Her presentation highlighted the need for education, awareness and advocacy of FPIES. IAFFPE RDD