The International Association for Food Protein Enterocolitis (IAFFPE) is a recognized 501(c)3 nonprofit corporation and organization that provides education, support, and advocacy for individuals with Food Protein-Induced Enterocolitis Syndrome (FPIES) and their families.
The organization began in September 2010 as the FPIES United Family Fund with support and guidance from the Children’s Hospital of Philadelphia. IAFFPE Founder Fallon Schultz started the fund for the purpose of FPIES research and education after discovering that there were no formal channels of support or information available to FPIES families.
With the success of the FPIES United Family Fund came the need to establish a broader international foundation that would serve to unite the medical community and FPIES families while remaining focused on improving the quality of life for patients affected by FPIES. Thus, the International Association for Food Protein Enterocolitis was officially launched in September 2011 with significant help from Dr. Jonathan Spergel, MD, PhD, who also serves as the Chair of our Medical Advisory Board.
Today, the IAFFPE partners with leaders in our medical community to develop evidence-based research with a focus on early detection and new treatment options. The foundation’s research efforts are coupled with our emphasis on education and advocacy to positively impact the lives of patients and families coping with FPIES. Ultimately, the IAFFPE represents families and medical professionals united by a common focus: finding a cause and a cure for FPIES.
For more information, please visit us at http://www.iaffpe.org.