Love a tubie? Deciding whether tube feeding could be right for your FPIES child? This week, we’re honoring Feeding Tube Awareness Week®–a time to promote the positive benefits of tube feeding as a medical intervention that saves and enhances lives!
IAFFPE is proud to be among the organizations participating in and supporting Feeding Tube Awareness Week®. This year’s theme is “Nothing Can Hold Us Back,” and it speaks to resilience in overcoming challenges and living life to the fullest. The Feeding Tube Awareness Foundation is spreading the word about the life-changing impact of nutritional support. This week is also dedicated to raising awareness in the general public about the medical reasons children are tube fed, the day-to-day life of a tube-fed child, and connecting families in the tube-feeding community.
Below are some valuable links to mark Feeding Tube Awareness Week®:
The decision to tube feed can be a difficult one. This article from the Feeding Tube Awareness Foundation talks about making the choice and provides helpful facts about tube feeding.
The Feeding Tube Awareness Foundation also provides this list of essential tube feeding resources for parents and caregivers to help in a child’s care.
Here’s an excerpt from the wonderful article “Why Awareness of Tube Feeding Matters” by Traci Nagy:
“Awareness matters. It matters that they know there are well over 200 medical conditions and diseases that can lead children to need extra nutritional support through tube feeding. It matters that they realize that these conditions aren’t always visible, and that looking ‘normal’ doesn’t mean there isn’t more going on inside. It matters that they know that the feeding tube can be thought of like any other medical device in that it helps you do what you can’t do on your own…for now. It matters that they understand that the benefit is that children get the nutrition and hydration they need to grow, develop and thrive.”
Finally, check out this awareness-raising video from the Oley Foundation, another organization dedicated to enhancing the lives of those with feeding tubes.
Is tube feeding part of your child’s life? Are you considering it as a feeding option for your child with FPIES? We’d love to hear from you about your experience in the comment section!