IAFFPE was thrilled to participate in Rare Disease Day 2013 on February 28th. Rare Disease Day brings awareness to the thousands of rare conditions that need hope and recognition, including Food Protein Enterocolitis Syndrome (FPIES). We honored the day by unveiling a new video segment on the fact vs. fiction of FPIES, featuring Dr. Anna Nowak-Wegrzyn, an FPIES expert from the Jaffe Food Allergy Institute at Mount Sinai. Thanks to video sponsor Neocate for helping our foundation shed light on a rare disease in the food allergy community.
In addition, IAFFPE’s Amity Westcott-Chavez represented IAFFPE and the FPIES community at a Rare Disease Day event at the California State Capitol. Her presentation highlighted the need for education, awareness and advocacy of FPIES.